Society has historically not taken a benign view of genetic disease. The laws permitting sterilization of the mentally re­ tarded~ and those proscribing consanguineous marriages are but two examples. Indeed as far back as the 5th-10th centuries, B.C.E., consanguineous unions were outlawed (Leviticus XVIII, 6). Case law has traditionally tended toward the conservative. It is reactive rather than directive, exerting its influence only after an individual or group has sustained injury and brought suit. In contrast, state legislatures have not been inhibited in enacting statutes. Many of their products can be characterized as hasty, unnecessary, ill-conceived, and based on the heart rather than the head. Moreover the lack of expert consultation sought has also been remarkable. One state legislature, for example, has advocated immunization for sickle cell anemia! Many others have enacted laws for the screening of inborn errors of metabolism, e.g., phenylketon­ uria, but have poorly defined the lines of responsibility to secure compliance. A spate of specific disease-related bills has emerged in the u.S. Congress, each seeking recognition and appropriations. Sickle cell anemia, hemophilia, Cooley's anemia and Tay-Sachs disease have been among the front-runners for support. Finally, in 1975, Congress has begun to examine an omnibus bill concerning all forms of genetic disease. The bill, termed the National Genetic Diseases Act is, however, still far from being enacted.

Genetics and the Law, I

National Symposium on Genetics and the Law (1975: Boston, Mass.); Annas, George J; Milunsky, Aubrey

New York ; London: Plenum Press

Da Capo Press, Incorporated

publisher not identified

Hachette Books

Hachette GO

Place of publication not identified, date of publication not identified

Place of publication not identified, 1976

United States, United States of America

1 edition, December 31, 1995

New York, ©1976

Proceedings Of A National Symposium On Genetics And The Law Held In Boston, Mass., May 18-20, 1975, And Co-sponsored By The Boston Chapter Of The National Genetics Foundation And The American Society Of Law And Medicine. Legal Status Of The Fetus / Margery W. Shaw And Catherine Damme -- The Fetus And The Law / Harold P. Green -- The Legal Aspects Of Fetal Viability / Leonard H. Glantz -- Medico-legal Issues In Prenatal Genetic Diagnosis / Aubrey Milunsky -- Karyotype, Predictability And Culpability / Alan M. Dershowitz -- Geneticophobia And The Implications Of Screening For The Xyy Genotype In Newborn Infants / Ernest B. Hook -- Medicolegal Aspects Of Genetic Counseling / Kurt Hirschhorn -- Problems Of Informed Consent And Confidentiality In Genetic Counseling / George J. Annas -- Problems In Genetic Screening Which Confront The Law / Harvey L. Levy -- The Liability Of Physicians And Associated Personnel For Malpractice In Genetic Screening / Jon R. Waltz -- State Supported Mass Genetic Screening Programs / Philip Reilly -- Artificial Insemination By Donor -- Status And Problems / Donald P. Goldstein -- Legal Aspects Of Artificial Insemination By Donor And Paternity Testing / Joseph M. Healey, Jr. -- The Currrent Status Of Paternity Testing / Angelyn A. Konugres -- Genetic Counseling For The Couple Who Are First Cousins / Lewis B. Holmes -- State Channeling Of Gene Flow By Regulation Of Marriage And Procreation / Seymour Lederberg -- Voluntary Sterilization Of The Mentally Retarded / Charles H. Baron -- Rights And Responsibilities Of The Insurer / John L. Thompson And Wendy M. Greenfield -- The Social Control Of Science / Arthur G. Steinberg -- Experimentation And Human Genetics : Problems Of Consent / Alexander M. Capron -- On Legislating Fetal Research / Charles U. Lowe -- In Vitro Fertilization -- A Legal Perspective / Philip Reilly -- Law And Cloning -- The State As Regulator Of Gene Function / Seymour Lederberg -- The Psychopathology Of Clonal Man / Leon Eisenberg -- Biological Roots Of Ethical Principles / Salvadore E. Luria -- On The Necessity Of Legislating Morality For Genetic Decisions / Daniel Callahan -- Why Shouldn't We Have A Eugenic Policy? / Marc Lappé -- Authorizing Death For Anomalous Newborns / Robert A. Burt -- Discretionary Non-treatment Of Defective Newborns / John A. Robertson -- From Social Movement To Clinical Medicine -- The Role Of Law And The Medical Profession In Regulating Applied Human Genetics / James R. Sorenson. Edited By Aubrey Milunsky And George J. Annas. Proceedings Of A National Symposium On Genetics And The Law Held In Boston, Mass., May 18-20, 1975, And Co-sponsored By The Boston Chapter Of The National Genetics Foundation And The American Society Of Law And Medicine. Includes Index. Bibliography: P. 495-515.

xii, 532 p. ; 26 cm
'Proceedings of a National Symposium on Genetics and the Law held in Boston, Mass., May 18-20, 1975 ...' - title page verso
Index
Bibl.: p.495-515

2023-06-28